July 2019

On July 20, Sick Cells hosted its 3rd annual Wiggin' Out for Sickle Cell fundraiser. The crowd was bigger and the laughs were harder this year. We can't thank our volunteers and attendees enough. Read more about this event a little further down the newsletter.

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June 2019

Summertime and the living is busy! The summer months have been some of the most packed months for the Sick Cells team. From our annual Wiggin' Out for Sickle Cell fundraiser to World Sickle Cell Day, we're excited to host more events, meet more community members and continue raising awareness across the country.

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May 2019

From our #FacesOfSCD photo series to the American Red Cross Heroes breakfast, Sick Cells made quite a few appearances in your inboxes and on your social media timelines this month. Needless to say, the Sick Cells team is staying busy and gearing up for an incredible summer 2019.

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Special Announcement

Congratulations Ashley and Marqus Valentine for being honored as the Red Cross' 2019 Blood Service Heroes. They were honored for their work in advocacy and storytelling in the sickle cell community on May 1, 2019.

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April 2019

As the saying goes, "when it rains, it pours" and this month it's pouring with conferences, summits, and sickle cell advocates at work. April's showers have Sick Cells in full bloom. Our #FacesOfSCD photo series is running again, and we'll even include some News You Can Use, but first...

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March 2019

More than 30 SCD advocates went to Capitol Hill for Rare Disease Week and various SCD advocated at the state level. This month, we'll recap the legislation discussed on the Hill and what the community can do now to stay engaged. 

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February 2019

This month, the Sick Cells team lobbied with 450+ other rare disease advocates, including about 40 sickle cell advocates on Capitol Hill in Washington DC for Rare Disease Week (RDW). Check it out in this month’s newsletter!

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January 2019

Happy New Year! Sick Cells is gearing up for one of its busiest years yet. We've already hit the ground running with a broadcast appearance for the Great Chicago Blood Drive and Dinner for a Cause. Next up, we're heading to Capitol Hill for Rare Disease Week 2019.

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November 2018

Living with a disability requires a lot of support. Sometimes even more support than a person is willing to admit. You, along with your family, have to manage doctors appointments, blood work, portacath flushing, medication refills, taking your daily medication, and so on.

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Mid-Month Bill S. 2465 Special

The current House still has four weeks to work this year. The time between the new House being sworn in and the current House finishing their terms is called lame duck session. Many bills, like S.2465 get passed during this time.

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October 2018

On October 11, the Senate had a verbal vote on legislation (S. 2465) sponsored by Senators Tim Scott (R-SC) and Cory Booker (D-NJ) to address issues related to sickle cell disease (SCD). 

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September 2018

You know around the time of year. We pay attention to the atmosphere we're putting him in and locations because some of that takes a toll on them…

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August 2018

Hip hip hooray! After a year in the making, Marqus had his total hip replacement on August 6. He shares his experience with the healing process…

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Sick Cells
July 2018

This month we'll recap our 2nd Annual Wiggin' Out event. We'll also give you an update on policy, Walks and Talks you can attend and a spotlight interview.

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Sick Cells
June 2018

Happy summer! It’s our favorite season at Sick Cells because it's when our team goes out to meet new and familiar faces.

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Mid-Month Chicago Special

The Faces of SCD storytelling program is an initiative to address stigma and other challenges faced by the SCD community – by giving a larger platform to patients, families, and caregivers.

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May 2018

Every summer, sickle cell organizations across the country host walk/run/jog/bike fundraisers that help support their efforts in the community. Sick Cells attends the events to collect stories from the community. 

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April 2018

Marqus shares how his service dog impacts his life. He recounts an event when the dog sensed a severe sickle cell crisis and came to Marqus' aid.  

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