501 (C) (3) Organization elevating the voices of the sickle cell disease community
"Well, I've been a nurse for 35-40 years, and I've specifically dedicated it to sickle cell for the last 20 years or so.
"I would get them more access to physical therapy. One of my big things that I'd like to work on is getting more non-pharmacological treatment."
"My oldest son went to Blue Lake Fine Arts Camp, and Marqus wanted to go as well. They all played instruments. The camp was in Michigan, outdoors, lots of fresh air, but they had never had a camper with sickle cell disease attend.
"With sickle cell, we typically only see the patients who are in crisis which means they are having a lot of pain. I am patient with them. I understand they are in pain, and it’s frustrating. I can empathize with that.